Migraine Aura Status or Persistent Aura's Journal

Between February 2005 and February 2006, a total of 57 subjects responded to Sofia Greene's internet survey devoted to persistent perceptual disorders. The survey, which involves an online questionnaire, will be continued for another year so that further submissions may be taken. Here is a reprint of the current version of her survey:

Dear All,

I am doing a research project on "Status Migrainous" with the Visual Problem, as opposed to the constant pain problem. This project has the support of a team of specialist doctors: Dr Frank Clifford Rose (London), Dr Dominic ffytche (London), Dr Markus Dahlem and Dr Klaus Podoll (Migraine Aura Foundation). This team will be responsible for the assessment of all results.

I am a "lay person" in the world of neurology. I work in fact as an artist, and having recently developed this vision problem I am determined to make it stop. I plan to compile as much information as I can from the internet and present it to the doctors listed above. Whatever they conclude or come up with I will share with everyone who has participated, and who knows maybe we will find a cure!

The project is for anyone who feels that they might have persistent migraine aura, prolonged migraine aura status, persisting visual disturbances or has a vision problem that lasts for long periods.

If you are interested, please fill in the questions below and email it to: statusmigrainous@yahoo.co.uk and/or to kpodoll@ukaachen.de. Please try to cut and paste it to your email so I don't have to open attachments. If you wish, you may add illustrations which depict your own visual experiences. Include as little or as much information as you like; I will make sure that all your information is kept confidential and nothing will be passed on to any third parties without your permission. I am optimistic that we will come closer to a solution through this joint endeavour and I promise that the results of the survey will be shared with everyone who has participated in the survey. The results will be available on the website www.migraine-aura.org.

Thanks for your help!

Sofia Greene

1. Name or screen name (optional):
2. Email (optional):
3. Location (optional):
4. Age:
5. Sex:
6. Nationality and Race (optional):
7. Do you have classic or common migraine? When did it begin?
8. What do you take for your classic or common migraine and does it help?
9. Have you been diagnosed with persistent migraine aura or prolonged migraine aura status?
10. What is your visual problem and how long does it last?
11. Any other problems that you think might be related?
12. What do you take or do for your vision problem and does it help?
13. Have you found a trigger for your vision problem?
14. What tests have you had and the results?
15. Other information you want to provide?